ALS Ice Bucket Challenge Progress




Each year, The ALS Association Upstate New York Chapter holds several fundraising events to raise awareness and funds that help provide invaluable services to people living with ALS.

From golf tournaments, The Walk to Defeat ALS(R), auctions and social gatherings, each event raises funds and increases awareness to help The ALS Association fund vital cutting-edge research and our patient services program. Come join the fun and help make a difference.


View our Calendar of Events to see all events including fundraisers, educational events and support groups.









2020 Walk to Defeat ALS™




Buffalo Walk to Defeat ALS:
Sunday, August 2, 2020
Delaware Park
To register or donate to a walker, visit HERE




Binghamton Walk to Defeat ALS:
Sunday, August 16, 2020

En-Joie Golf Course
To register or donate to a walker, visit HERE




Lowell Smith Syracuse Walk to Defeat ALS:
Sunday, September 20, 2020
Long Branch Park
To register or donate to a walker, visit HERE




Rochester Walk to Defeat ALS:
Saturday, September 12, 2020
Ontario Beach Park
To register or donate to a walker, visit HERE







Growing Hope


1st Growing Hope Social Event


Thursday, April 2, 2020 | 6:00 PM



Buffalo and Erie County Botanical Gardens
2655 South Park Ave
Buffalo, NY 14218


Garden/Cocktail Party Attire Suggested


The ALS Association Upstate NY Chapter is thrilled to present our newest event, Growing Hope!  This exciting social event will take place among the beautiful spring flowers at the Buffalo & Erie County Botanical Gardens.  Enjoy food, drinks, music and auctions as you wind through this thriving garden sanctuary. The event, chaired by Lou Billitier and Danny Gare, aims to raise funds critical to supporting local care programs for those living with ALS in the Western New York region. The inaugural honoree is Dr. Tomas Holmlund, Director of Neuromuscular Center/MDA Clinic at the DENT Institute.



Please note that there will be no ticket sales at the door on the day of the event. All tickets must be purchased no later than March 27th, 2020.




16th Annual Robert Wright Memorial


 Golf Tournament


Date: Monday, July 27th
11:30am Registration
12pm Lunch
1pm Shotgun Start & On Course Events
6:30pm Dinner

Location: Pompey Golf Club
7200 Hamilton Road
Pompey, NY 13138


On Course Events:
Longest Drive
Closest to the Pin
Second Shot Closest to the Pin
Hole-In-One on:
#6 wins $10,000 cash
#8 wins $10,000 cash
#13 wins $10,000 cash
#16 wins $10,000 cash


$680 per foursome. No singles.



To register: contact Monica Shworles


Sponsorship opportunities available:




Upstate ALS Golf Tournament


Date: Saturday, August 15th
8:30am Registration
9am Teeoff

Location: Highland Greens Golf Course
1055 State Highway 11B
Brushton, NY 12916



Low and high score
Door prizes
Closest to pin
Furthest Drive

4 person best ball, shotgun start
Entry fee: $280 per team
Register by July 31, 2020
Contact: Felix Tam,, (518)882-8826

Sponsorship opportunities available: contact Mark Helmer, (315)389-4390




One Dollar Difference



One Dollar Difference was created to help you plan and/or sponsor a Third Party Event that will benefit The ALS Association. Through a Third Party Event, you can raise critical funds for The ALS Association by putting together your own special event to help in our fight to cure and treat Lou Gehrig’s Disease.

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