FYI Fact Sheets from The ALS Association

The ALS Association offers literature, free of charge, on each of the topics listed on this "FYI" information index.

The following highlighted items are available on this web site in Adobe Acrobat format for viewing and printing.

Please click on a topic to open.

Caregivers:

• Family Caregiving-Why Respite?
• Oral care for the patient with ALS: A Guide for the Caregiver
• For Caregivers Coping with Burnout
• Cognitive Impairment for Families

Benefits:

• Benefits for Veterans with ALS
• The New Social Security Rules Addressing Presumptive Disability for People Living with ALS
• A Professional's Guide To Assisting Persons with ALS and Their Families with Obtaining Government Benefits
• Family and Medical Leave Act

Research/Clinics:

• ALS Association Certified ALS Centers
• ALS Clinics Affiliated with ALS Association Chapters
• ALS Program Helps People with ALS Communicate 
• Cognitive Impairment for Professionals
• Drug Development Update   
• Genetic Testing for ALS
• H1N1 and Seasonal Flu Vaccine information 
• Epidemiology of ALS and Suspected Clusters
• Nursing Management/Nursing Care Plans
• Rilutek
• Donation of Tissue for ALS Research
• Brain Computer Interface Technology

Newly Diagnosed Patients:

• Tips for Newly-Diagnosed ALS Patients from Will Hubben
• Guide to Living a Fuller Life with ALS 
• Second Opinion FAQs
• Patient Bill of Rights (for People Living with ALS)
• Be a Careful Internet-User
• Orthotic Devices
• Dressing With Ease
• Minimizing Fatigue
• Information on Advance Directives
• Criteria for Diagnosis

Patients:

• Breathing Difficulties
• Reasons For Living
• Suspected Abuse
• Influenza and Pneumovax Immunizations for ALS 

Speech/Swallowing:

• Recipe for ENSURE Shake
• Non-Chew Cookbook Form
• Managing Excessive Saliva
• Feeding Tubes
• Augmentative/Alternative Communication
• Rehabilitation Approach to Adaptive Devices