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The ALS Association Upstate New York Chapter
Providing service to families in 48 NYS counties! Check here.


Latest News

New Study Will Look at the Youth Caregiving Experience
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Progress in Drug Development Reviewed at The ALS Association Drug Company Working Group Meeting
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Senate Passes Steve Gleason Act to Help Ensure Access to Speech Generating Devices
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2015 Walk to Defeat ALS

It's never too early to start

7/25/15 Binghamton Walk

8/1/15 Buffalo Walk

9/13/15 Lowell Smith Syracuse Walk

9/19/15 Rochester Walk

2013 walk to defeat new tshirt

The Walk to Defeat ALS raises awareness and funds that help provide invaluable services to those living with ALS.

2015 ALS Symposium: A Multidisciplinary Approach for Treatment of ALS

Date: Friday, June 5th Time: 9:15 am – 4:30 pm

Registration begins at 8:30 am

Location: RIT Inn & Conference Center 5257 W. Henrietta Rd. Henrietta, NY 14467

The 2015 ALS Symposium: A Multidisciplinary Approach for Treatment of ALS will take place on Friday, June 5 in Rochester, New York. This day-long conference will bring together a number of leading professionals in the field of ALS research and care. 

For more information, click here.



ALS Merchandise
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Needs a Cure

ALS Baseball Totes

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Support Groups meet monthly in Binghamton, Buffalo, Rochester, Syracuse and Watertown(suspended until further notice).  Click here for more information regarding dates/times for your local meeting.


We LOVE our Volunteers!

 We wouldn't be where we are today without their help and guidance.  Are you a highly motivated individual with a passion for finding a cure for ALS? Well then, we NEED you!  Only you, the volunteer, can tell us what works best, and help us reach our highest potential.  We are looking for Volunteers in ALL areas, especially our Walk Committees.  Click here to submit a volunteer form today!

We are currently seeking to expand our crew as we head into our 2015 Walk to Defeat ALSwalk season. If you are interested in joining a walk committee (Buffalo, Binghamton, Syracuse or Rochester) please contact our office at:


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GoodSearch: You Search...We Give!

Search the web with and each time you do a search, GoodSearch will donate a penny to our cause!

Shop online at and a percentage of each purchase will be donated to our cause! More than 600 top stores are participating including Amazon, Target, Staples, Best Buy and more!



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OUR MISSION: Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.


The ALS Association Upstate New York Chapter
890 Seventh North Street, Ste. 108 - Liverpool, New York 13088
1-866-499-7257(PALS) - 315-413-0121 - Fax: 315-413-0508
All content and works posted on this website are owned and copyrighted by The ALS Association. ©2011